Monday, October 3, 2011

31 For 21: Identical Twins with Down Syndrome and PDD Autism, common?

October is Down Syndrome Awareness Month
For many of us, every day is a chance to promote Down syndrome awareness—advocating for our children to be included in school and community activities, highlighting their talents, giving them opportunities to show just how much they have to share. The calendar, however, provides us with one month during the year when we can really step up those efforts. Please feel free to ask any questions you may have about Down Syndrome or join me in spreading awareness.
Sometimes kids with DS have a rough start

Sometimes parents get blessed with DOUBLE the cuteness

Sometimes parents get blessed with big chubby cheeks to kiss a million times
 I have yet to find any statistics out there that are proven, but I can tell you that having identical twins is rare, having identical twins with a genetic condition is even rarer and even rarer yet, is having identical twins with a dual diagnosis of PDD Autism and Down Syndrome.  To date, I am the only parent I have found thus far with the dual diagnosis.  If you know of another set of identicals with the dual dx, please comment here!  I would love to connect..  I know my family is a 1 in a million :)

2 comments:

LineMarie said...

I love your blog. I have been following for a while now.

Wow these pictures are so adorable!!

Such cuties. They still look the same today :)

Anonymous said...

I can't believe how much they still look the same now as little boys as they did as babies, and yet you can see the growth and slight changes in their looks!!! You guys are ALL amazing, including, Tristan, Camille and Elijah!!! I am blessed to know you!