Thursday, November 13, 2014

Homemade Soap Product List

One of my favorite hobbies is making homemade soap.  I have bought homemade soap for years and prefer it very much so to the commercial bar soaps full of preservative chemicals.

I have been making my own laundry soap and cleaners for about four years now.  I added the homemade soap to my list a little more than a year ago, so far its my favorite ME time that I have.

I updated my soap blog with a product list after many requests so I thought I may as well share it on the family blog as well.

Take a peek:

Stacy's Soap Suds

So what are your favorite scents?  Are there any scents you would like me to try?  Still have some holiday scent ideas I will be trying soon.  Like Peppermint Swirl, Minty Vanilla, Mocha Mint, open to try anything.  I LOVE me some fresh wonderful smells!!!

Monday, November 3, 2014

Day three Post Op and feeling good

After months of waiting and praying for the twins surgery that was scheduled for October 31st, we have come out knowing that things we not as bad as anticipated, Praise the Lord!

Rewinding a few months, Caleb went in for a hernia repair and dental work back in June at Children's Hospital in Pittsburgh.  Once he was put to sleep and they were trying to pass breathing tube they noticed they were having a difficult time passing the size tube they generally used.  Both twins have subglottic stenosis, which is a narrow airway.  As they downsized the tubes a few times they called off the surgery and stated Caleb had an unstable airway that would have to be assessed before he could have these elective surgeries.

We arrived at the hospital on Friday with some anxiety as to the outcome.  The team came in and said they were going to do Isaac first.


Isaac:
He was having his airway checked out.  A Laryngoscopy, Bronchoscopy and a endoscopy to monitor GERD... Dental work with extractions and ear exam/repair.

Here was Isaac after his "happy juice" about to go back to surgery.

Isaac was due back in surgery for an hour and a half.  So we kept Caleb busy by going to a playroom and hanging out for a bit.  He loves to sit in these little red cars.  He is running out of room and soon won't even be able to get inside.  I may just have to contact the manufacturer and see if they make an adult version for my Mister Caleb.


Isaac procedure took a little longer than expected due to a bigger issue with his ear drums than they were expecting.  Dr. Mehta repaired a hole in the right ear but was unable to fix the left ear drum which is completely ruptured and needs a 2-3 hour surgery alone.  He said they could not add that to the OR schedule for the day so we will have to come back to have this done.  His airway looked pretty good, just under the normal size for children with Down Syndrome and his reflux looks managed.  As far as dental work he ended up having three teeth extracted from the bottom and the roots dug out from a tooth that broke off recently on the top.  Lots of sealants and a couple of caps on some back teeth.  He's a new boy!!



Caleb:

Caleb's team was very thorough when it came to dealing with airway issues.  They were looking at several different scenarios if they couldn't pass a breathing tube as was the case back in June.  I was very pleased with their detailed explanation of different steps they would take.

Caleb was having more procedures done under this anesthesia due to him being considered more high risk.  He was having his airway checked out.  A Laryngoscopy, Bronchoscopy and a endoscopy to monitor GERD... Dental work with extractions and ear exam/repair (all same as Isaac)... then he was also having a cyst on his neck removed and a hiatal hernia repaired.  It was not quite clear what kind of cyst was on Caleb's neck but that would be determined when they got in there to remove it.  

Calebs procedure was to take around three hours to complete.


Caleb chilling with his "happy juice "

After three hours had passed, the ENT Dr. Mehta came out to update his part of the procedure. He said that his airway was better than expected and it was indeed small but not in a terrible way.  He said it was measured and now documented in their system as to what size breathing tube to use with future operations.  He said that the cyst was not what they were expecting it to be (a thyroglossal duct cyst) and it was a much easier removal.  So from the ENT standpoint it was a good outcome for sure. An hour later the general surgeon came out and said the hernia was repaired and he was good to go, then dental came out next and said he had four teeth extracted and sealants applied.

Four and half hours later Isaac was still being a real trooper playing on his iPad, watching tv and letting time pass by.




We were pleasantly surprised when Caleb woke up in recovery and drank 8 oz of apple juice right away and then signed for more.  Usually Caleb takes hours to come out of anesthesia, not today, he wanted to drink and get outta there.  Children's had a bed space reserved for Caleb for an overnight stay and they even put in a second IV site for his stay while he was sedated.  When he woke up all of the doctors said that the surgery procedures all went better than expected and he was free for discharge if we were comfortable taking him home.  WOW!! Thank you Thank you, and we were off.





Day #3 Isaac is up and ready to tackle school again.  Doctors gave him today off school but he will return tomorrow with no gym class for a month until our follow up.  Caleb is not quite himself and slower to get around.  He is in good spirits and playful, but I can tell he is hurting a little yet. He will stay home with me all week and he too is off gym class and extra physical activity for a month.  I am so happy things went as they did.  I also wanted to thank each and everyone who kept the boys in their prayers and asked about them with genuine concern, we all felt the love.




This photo is them this morning sharing some iPad time together,
they are so adorable when they just chill together.



Friday, October 17, 2014

Caleb and Isaac are NINE!!!!




This morning as we woke the twins with an excited Happy Birthday they jumped up and signed excited (which is actually their sign for birthday anyway).  We have been counting down the days for them.  Each year gets a little better and a little better.  To be honest at first we didn't have parties for them..  We had a 1st birthday party and a second birthday party but then parties were way to overwhelming for them so we decided to not put them through the stress and didn't have them for a few years.

The past two years we had one BUT it was just a casual get together, we did not sing Happy Birthday or really even make an extra big deal about the day.   If you've ever known a child with Sensory Processing Disorder things like parties and people singing and clapping at them is way over stimulating and creates awful behaviour.  A typical child without these issues loves the attention and enjoys the birthday scene, my guys would crawl under the table, run to another room, start scratching open skin till they were bleeding or just plain cover their ears and scream and cry.  

We certainly have enough cousins now that we celebrate birthdays all year long just about monthly, if not twice a month.  They are getting better and better at attending the parties and have now started speaking "Happy Birthday *cousins name*" with their iPad...    

Tonight we are getting their favorite pizza from Laskas pizza (locals know that's awesome pizza), we are getting balloons and a special cake that I think they will both love.   We will sing Happy Birthday very softly without clapping and watch Duck Dynasty.  OH and as per their request this will all take place at Grandma and Papas house cause that's where most of the birthday parties happen...LOL

Seriously... NINE!!!????



Happy Birthday Caleb and Isaac!!!

Tuesday, October 14, 2014

Down Syndrome Awareness Day 14 - Tooth Crowding



As I sit here somewhat disappointed in myself that I was not able to make a blog every single day of the month of October I realize... I'm a BUSY WOMAN!!!  I think some of you have tried to tell me that before, and actually somedays I can sure feel it.

Yesterday, my oldest daughter Tristin got her tonsils out.  She is the last of our five children to have them removed.  As you can see in the photo below Caleb is showing you  he doesn't have tonsiles anymore.


This is a great photo for two reasons, ok make that three:

1. Caleb's mouth is open so far we can see all the way back
2. Caleb's mouth is open wide enough to show off his "shark teeth"
3. Isaac doesn't smile very often and we caught one here 

My Down Syndrome Awareness fact to share today is that often children/adults with Down Syndrome do not have enough room in their mouth to properly display all of their teeth. People with Down Syndrome often have crowding and end up with poor tooth quality.  Our guys are definatly part of that statistic.  Their baby teeth came in crowded but their adult teeth came in so super crowded there was no room so they are in double rows.  This is going to be taken care of at the end of the month during surgery.  Dental is going to give them a good cleaning, fix any cavities and extract the bottom back teeth.  Originally the dentist said they would not want to take them for fear that their mouth would grow with them and make room to pull them forward when they were older.  The sad result is that Caleb and Isaac will probably never be good candidates for orthodontics as they have to be papoosed down just to get a cleaning.  If our unfamiliar with what that means, they are strapped down and forced to lay still for three minutes while the dentist gets a look.  Any and ALL dental procedures are done under general anesthesia for a reason.  They are biters!!!!

We have a family joke that these teeth are called shark teeth.... My guys are not the only ones, their cousin Eric had teeth like these too as baby teeth.  He had them pulled and adults teeth came in just fine.

Anyone else have Shark Teeth?  How were they taken care of?

Saturday, October 11, 2014

That's My GIRL!!!!!

Daddy took Camille and Elijah out for their first hunting experience this morning.  They saw a few squirrels but nothing worth trying for.  Elijah was his usual jabber jaw and Camille was wishing she could give it a go again in the afternoon with just her and dad.

I was making fun of her before she left because she was putting on makeup. I told her that squirrels didn't care what she looked like and she said "Oh but they do!". 

So dinner time came, darkness arrived and Camille and Tom rolled in.  I joked with Camille and asked if it was indeed difficult to put dinner on the table from hunting.  She beamed a BIG OLE SMILE and told me she rocked her makeup because she got one!!  Seriously I thought she was joking and I laughed at her...

SHE DID ROCK THAT MAKEUP!!!!!!!! 
Its a nice sized squirrel.
 
 

First Day of Hunting for kiddos

Camille and Elijah took their PA Hunters Safety Course a few weeks ago.  Since I have never taken it myself I also sat in on the class and got certified to hunt.  I have decided to allow the youngins to go first and let daddy teach them the ways of the hunter.  This morning they got up bright and early, for a Saturday, and got ready to hit the woods.  They actually were ready and waiting on Tom....and waiting...and waiting...LOL
 
Tom gave them the whole gun lesson and talk and they finally went off on their way.  Today they are hunting for squirrels and looking for wild mushrooms. 
 
GOOD LUCK KIDS!!!!
 
 
 
 


Down Syndrome Awareness Day 11 - It's about Isaac

The other day I did a post all about Caleb, its only right that Isaac gets an all about Isaac post now.
 
 
Isaac is truly my baby by 1 minute.  Isaac was Baby B.  Isaac was the reason I had to have an emergency C-section 9 1/2 weeks early.  Isaac, oh Isaac, has kept me on my toes ever since.
 
Isaac was born weighing in at 2 pounds 10 ounces.  Isaac was born with head trauma from being stuck in my ribs.  Isaac was not immediately recognized as having Down Syndrome because of his facial deformities from my ribcage.  He came out with a heart shaped head.
 
Isaac has had a rougher start than Caleb.  He was in the NICU double the time Caleb was, he's had double the surgeries Caleb has had and he tends to be the sicker of the two when illness breaks out.
 
I feel that due to his rougher start he has always been a few steps behind Caleb.  Sitting, Crawling, Walking and most recently finger spelling a bit after Caleb got the concept of it.
 
Isaac is not very social when it comes to playing with peers his age.  Cousins label him as the twin that hurts them, which breaks my heart.  He often pushes, pulls hair or hits kids smaller than him.  There is no rhyme or reason most of the time therefore we always have to keep our eyes on him when with family members and at school.  On the other hand, Isaac is very social towards adults.  At church he has been called the greeter on several occasions because he's been known to make his rounds to every pew just to say HI to each church family member.  He gives hugs, high fives and giggles to all.  In waiting rooms he's been known to approach total strangers and offer them a hug. He particularly likes very large men. Its adorable when he will approach a big ole intimidating biker dude and just give him a hug and run :)
 
Isaac was the first twin diagnosed with Autism.  He was actually diagnosed at 22 months old.  We went to the Down Syndrome Clinic with questions as to why he hummed so much and twirled things and dangled things in front of his face constantly.  At that point we were still trying to figure out the whole Down Syndrome thing and had no clue that we would leave the clinic that day with a new diagnosis of Autism.  I was honestly devastated and so emotional for several weeks not knowing how we would be about to handle and understand yet another disability.
 
 
One way you can tell Isaac from Caleb these days is by his stimming toy.   A TOOTHBRUCH:
 
 
 
He twirls it, he hits the back of his neck with it and he beats it like a drumstick on things to hear the sounds.  As I sit here typing right this minute he comes up and points to the picture of himself and signs "toothbrush".  He loves his toothbrushes.  So much so that we have ALL learned to hide our toothbrushes in weird places.  If you come to our house you might find toothbrushes  ontop of the fireplace mantle, in underwear drawers, on top shelves of bookcases, tucked in a basket under hair supplies and body creams.  Isaac can and will find you toothbrush and claim it as his own.  Grandma and Papa even know to keep their toothbrushes up when we visit.  Its quite comical and definitely something we will always associate with Isaac.  This summer we went to a local flea market and found a sheet of 12 toothbrushes for $2, we bought three of them.....LOL
 
 
 
 
As you can see below Isaac even will use is iPad to request a certain color of toothbrush for the day, he's quite particular about his toothbrushes.
 
 
Isaac is also my escape artist.  He tries and tries but still cannot open the doors at home.  In the event someone leaves a door or a gate latch open Isaac is the first person to realize it and takes off.  Unfortunately we have had strangers return him to us on two occasions.  Thankfully we had an ID bracelet on him with our contact information.

 
He doesn't smile as much as his brother does but man oh man, when he does smile you can't help but smile right along with him. 



Isaac struggles to communicate with us and often acts out with bad behavior.  Isaac has terrible chronic constipation issues that I think makes him feel miserable all the time and makes him act out.  Isaac loves pretzels and Cheerios.  Isaac loves his Papa so much that besides iPad its his only spoken word.  He loves to work and learn, he's really one tough cookie.....and he's my baby boy!!