Wednesday, October 12, 2011

31 for 21: Down syndrome and Constipation

Children with Down syndrome can be constipated for all of the same reasons that kids without Down syndrome become constipated—poor diet and lack of exercise, among many reasons.  

However, children with Down syndrome are also prone to three conditions that can result in constipation: (1) hypothyroidism, (2) Hirschsprung disease, and (3) Celiac Disease. 

Caleb and Isaac both already have Hypothroidsm.  They were officially diagnosed with this last November.  They are taking medication daily to help their thyroid function properly, they will take this for their entire life.

We went to the Down Syndrome Clinic at Children's in Pittsburgh on Monday and due to their severe constipation they are now testing them for Celiac Disease.

About 10 minutes ago I started a Miralax cleanse with them.  I am dreading it and was tempted to put it off until it was "convenient for me", but I realize that being constipated is really uncomfortable and I will just cancel their preschool class on Friday to stay home and clean their messy diapers.  

I have been giving them 1/2 to 3/4 capful of Miralax 3 or 4 times a week.  For the next 48 hours I am to give them 3 capfuls of Miralax a DAY... then take it to 1/2 a capful daily.  Yet, ANOTHER daily medication I need to give to the boys.  Until we figure out why they are having so many bouts of constipation I will need to continue this.  

There are lots of other factors involved.. They do not eat well.. They only drink rice milk.  And Isaac had a section of his small bowel removed when he was an infant due to N.E.C..

So for the next few days.. please pray for us!! Pray that I can keep up with laundry and diaper changes and that the boys butts don't get sore.  Fun Times...Fun Times!!

1 comment:

Mary said...

OH MY I just did the miralax clean out with Riley and it was bad. I can't imagine x2. I did discover that they sell a kirkland brand of miralax now. Party! Good luck with everything.