This is what I read from NDSS.org today:
"Dr. Bill Cohen, national leader in the Down syndrome movement and dear friend of the National Down Syndrome Society (NDSS), died on February 6, 2009. He touched the hearts of families around the country and was a respected colleague to all physicians who knew him. Dr. Cohen was serving on the NDSS Clinical Advisory Board.
As a developmental-behavioral pediatrician, Dr. Cohen was the director of the Down Syndrome Center at the Children’s Hospital of Pittsburgh. He was the co-founder and co-chair of the Down Syndrome Medical Interest Group (DSMIG) which produced the seminal healthcare guidelines for all persons with Down syndrome, ages 0-18. He also co-authored the book, Down Syndrome: Visions for the 21st Century, published in 2002 on behalf of the NDSS. For all of these visionary efforts, he was given a Clinical Service Award by the NDSS in 2004.
His colleagues remember him best for his seemingly endless amount of joy, his eager willingness to share best practices, and his earnest belief that all people with Down syndrome deserve the best from their medical providers and society, at large.
In addition to his work on Down syndrome, Dr. Cohen was a leader in teaching and studying doctor-patient communication, family adaptation to chronic medical conditions, clinical hypnosis, and family therapy. He was a clinical member of the American Association of Marriage and Family Therapy, the American Academy of Pediatrics, the Society for Developmental and Behavioral Pediatrics, Ambulatory Pediatric Association, and the American Balint Society.
The world will continue to change positively because of Dr. Cohen’s lasting impressions. The NDSS family misses him intensely and will be grateful to him forever."
And when you have some time it is VERY much worth every minute to watch this video of his last presentation with the NDSS:
Prayers go out to his family, co-workers and the all of his patients who feel such a loss of a great doctor that will be impossible to replace.