There is a new autism center opening in Ridgway, PA. Today they held an Open House. I was going for two reasons. To represent The Arc of Jefferson County so that I might be able to provide information to our own clients and two as a parent of two children with Down Syndrome and PDD Autism. As soon as I stepped into the facility a big smile came across my face because this was the kind of place I had only read about on the internet or in books.
I am one of those crazy mamas that tries real hard to give my kids everything. Thus, we actually have a sensory room in our house. Its no where as developed as this particular autism center, but for a home version I think its pretty cool. Both boys have been diagnosed with Sensory Integration Dysfunction. Trying to research this and find someone to help me provide them with the right kind of sensory has been like banging my head against the wall... I should note here that head banging is something that both my boys do on a daily basis.
I am so convinced that a sensory room is the way to go with my boys that I asked for a sensory room as a wish. Both boys qualified for a wish via the Make-A-Wish Foundation. We thought about what to chose for a few weeks. I know the big wish most people choose is a trip to Disney. Although I KNOW the older three would absolutely love love love to go there (never been there before) I know that being in a busy place like that with all the noises and lights and commotion, that would be WAY WAY WAY too much for the twins. In my opinion I think that would be the last thing they would wish for, at this age. You see this was such a challenge for Tom and I because the boys are completely non-verbal. We wanted something that would give them hours and hours...and hours of joy. Wish #1 Finish our basement into a sensory room Wish #2 and outside play area with swing set and toys. We are anxious to see how it all turns out.
So has anyone else traveled so far for therapy?
Does anyone else have a child with SID?