Prayers for Caleb and Isaac

We went to the eye doctors yesterday in Murraysville.  We love that place.  We used to see Dr. Jane Hughes, but she's so busy with patients it takes weeks, if not months, to get in to see her.  We have been seeing their newest Doctor, Dr. Michelle Wertelet.  I think she's just as wonderful as Dr. Hughes.

I have to say, and I know those of you who know my boy will find this hard to believe, with my boys being VERY uncooperative with eye exams... Dr. Wertelet works wonders.

I made the phone call last week to get an appointment ASAP due to a "new stim" the boys seem to both be doing.  They are sticking their fingers in their eyes.  I mean touching their eye ball and putting their finger into their eye socket.  It began about a month ago with Caleb and then Isaac started doing it a few weeks ago too.  Its the weirdest stim so far they've done.  I had them at their weekly OT appointment last week and Caleb poked his eyeball like he does and they suggested we get them into the eye doctors immediately.  They said they had a little boy with Autism do this before and they couldn't remember what happened but that we needed to see an eye doctor.  So.....

After the exam, we were reassured that the reason they have not been wearing their glasses for the past 3 months or so is because both boys prescriptions have changed alot.  Then we were told that there was some concern about the poking because she saw some damage to the optic nerve.  There seemed to be some fluid retention there and she wanted to get a better look.  So we are waiting for the anesthesia department to call us to schedule a sedated MRI in Pittsburgh soon.  Upon further questioning from the doctor we really need to check out their brain and their eyes because not only do they poke their eyes like they do, but they also bang their heads really hard on walls, floors, furniture, etc... when they are frustrated.  This also seems to be happening daily.  So the MRI will tell us if there is fluid on their brain pushing on the optic nerve, or if their poking their eyes have damaged the optic nerve.  At any rate, we have to get them to stop this immediately or they risk losing their sight.

UGH.. these boys are always teaching us something.  They teach us so many wonderful things and they teach us so many different medical issues and they teach us that God is in control and he is working to make us be the best that we can be.   It reminds me of this bible verse:

1 Peter 1:6-7 (New International Version, ©2010)  ...taken from www.biblegateway.com

⁶ In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. ⁷ These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed.

Yet another trial, yet another reason to talk to God a little more.  I thank you in advance for saying a few prayers for my boys.  I will update when I know any more.   It probably sounds scarier than it is, but when its your kiddos, its always concerning.